Syracuse

Palliative care in amyotrophic lateral sclerosis : from diagnosis to bereavement / edited by David Oliver, Gian Domenico Borasio, Wendy Johnston

Livre

Edited by Oxford University Press. Oxford - 2014

Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease.--Back cover

Amyotrophic lateral sclerosis/motor neuron disease / Christopher E. Shaw, Annika Quinn and Emma Daniel. Palliative care / David Oliver. Communication: breaking the news / Richard Sloan, Pongratz and Gian Domenico Borasio. Decision-making / Wendy Johnston. Advance directives / Gian Domenico Borasio and Raymond Voltz. Respiratory complications / Deborah Gelinas. Control of symptom: dysphagia / Edith Wagner-Sonntag. Control of symptoms: Cognitive dysfunction / Laura H. Goldstein. Pain, psychological distress, and other symptoms / David Oliver, Gian Domenico Borasio, and Wendy Johnston. Psychosocial care / Sue Smith and Maria Wasner. Spiritual care / Robert Lambert. Multidisciplinary care: physiotherapy / Ulrike Hammerbeck and Emily Jay. Multidisciplinary care: occupational therapy / Chris Kingsnorth and Sarah Lavender. Multidisciplinary care: speech and language therapy / Amanda Scott and Maryanne McPhee. Multidisciplinary care: nursing care / Dallas A. Forshew. Complementary and alternative medicine / Gregory T. Carter, Sunil Kumar Aggarwal, Michael Weiss, and Richard S. Bedlack. End-of-life care: ethical issues / Leo McCluskey, Lauren Elman, and Wendy Johnston. End-of-life care in ALS / Nigel Sykes. Bereavement / Joy Kelly. No time to waste: a family's journey from diagnosis to bereavement / Marika Warren, Michelle Warren, and Douglas Warren.

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