Disclosure dilemmas : ethics of genetic prognosis after the 'right to know/not to know' debate / edited by Christoph Rehmann-Sutter, ... Hansjakob Müller, ...

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Edited by Ashgate Pub.. Farnham, Surrey (England), Burlington (VT) - 2009

The right to know, and the right not to know : ten years on / Ruth Chadwick. Genetic counseling : placing the room in context / Barbara Katz Rothman. Genetic counselling : clinical settings and constraints / Hansjakob Müller. Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer. Communication yes, but how : and what? Commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter. The need for an ethics of kinship : decision stories and patients' context / Rouven Porz. Testing for susceptibility genes : a cautionary tale / Margaret Lock. 'If only I had (not) known that' : about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra. The symbolic fallout of gene talk : replacing the person with manageable constructs / Silja Samerski. Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair. How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl, and Maximilian Seibl. Responsibility towards relatives / Michael Steel. Careful communication of 'bad news' : the cancer experience / Wolf Langewitz. The responsibility of the truth-teller / Thomas Cerny. Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch, and Mette Nordahl Svendsen. Receiving and interpreting information : a joint enterprise / Jackie Leach Scully. Without disclosure, no informed choice / Peter Miny. Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter.

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